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Sunday, May 15, is TSC Global Awareness Day. As defined on http://www.tscinternational.org/, “Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are living independent, healthy lives and enjoying challenging professions such as doctors, lawyers, educators and researchers.  The incidence and severity of the various aspects of TSC can vary widely between individuals—even between identical twins.” – See more at: http://www.tscinternational.org/pages.aspx?content=6#sthash.pW5YBv5G.dpuf

 

One of our students here in Holliston has Tuberous Sclerosis Complex, or TSC. Charlotte is a cheerful girl who loves to laugh and have fun.

 

Charlotte’s mom kindly shared the following:

“Last year Charlotte’s Dad created the campaign of #IAMTSC. The idea is that even though this disease is rare, it touches not only the person living with it but all of their friends, family, teachers, doctors, etc.  We are all one working together to better the lives of people with TSC and to one day find a cure.  He [Charlotte’s dad] wrote and directed a series of public service announcements and of course included Charlotte’s story in this one:

Here are some other sites:
We are so grateful everyday that Charlotte has the gift of language.  So many kids are non-verbal and are never able to really communicate.  When Charlotte was a baby, she had a very damaging type of seizure called Infantile Spasms.  Unfortunately, they went undiagnosed for almost 5 months before she started the medication that stopped them.  This could have really affected her language but she has worked so hard to talk and we feel so blessed that she continues to make such great progress with her speech.”

 

Thanks for taking the time to read this! Please check out the links listed above for more information!

Check out the American Speech-Language Hearing Association’s (ASHA) page about Better Hearing and Speech Month!

ASHA’s BHSM Link

Additionally, the following song was written by one of ASHA’s staff members. He was inspired by his mother, who suffers from a Communication disorder. It’s worth watching!

ASHA Music Video

WHAT IS AN SLP POSTER

The month of April has been recognized as Autism Awareness Month since the early 1970’s in the United States. This is a special opportunity to educate the public about autism. However, many have felt that Autism Acceptance Month would make for a better message (and we SLPs agree!). Below is a handout created by The Speech Bubble SLP (from teacherspayteahers.com) that briefly shares some facts about Autism.

AutismAwarenessHandout

Autism Awareness Handout

“Think of it: a disability is usually defined in terms of what is missing. … But autism … is as much about what is abundant as what is missing.” -Paul Collins, Not Even Wrong: Adventures in Autism

 

Below is a list of books for children grades k-5 that focus on raising awareness not only about Autism but also everyone’s differences.  For additional resources please visit AutismSpeaks and NeuroTribes .

K – 1st

Susan Laughs by Jeanne Willis

It’s Okay To Be Different by Todd Parr

Some Monsters are Different by David Milgrim

 1st – 5th

The Autism Acceptance Book by Ellen Sobin

In My Mind: The World through the Eyes of Autism by Adonya Wong

Ian’s Walk by Laurie Lears and Albert Whitman 

Good Morning!

We recently came across a great resource for targeting specific areas of language using regular storybooks. We’ve received permission from the author of this document, Dr. Bonnie Berg, to share it with you. Click the link below the picture to download the list. Enjoy!

-The Placentino SLPs

Book List by Language Target

http://www.hanen.org/Helpful-Info/Articles/Tuning-In-to-Others-How-Young-Children-Develop.aspx

http://www.npr.org/sections/ed/2015/09/14/437515492/the-surgeon-who-became-an-activist-for-baby-talk?utm_source=facebook.com&utm_medium=social&utm_campaign=npr&utm_term=nprnews&utm_content=20150914

Affinity Therapy

Affinity therapy is an approach developed by Ron Suskind, a Pulitzer Prize-winning journalist and author of “Life, Animated,” and his wife, Cornelia, while trying to connect with their son Owen who has autism.  The Suskinds embraced Owen’s love of Disney movies and developed a therapeutic approach that incorporated this passion.  “Life, Animated” tells the story of their journey with Owen.  For more information about the Suskinds’ story, go to:

http://www.nytimes.com/2014/03/09/magazine/reaching-my-autistic-son-through-disney.html?_r=0

For more information about affinity therapy, go to:

http://lifeanimated.net/affinity-therapy-2/

A group of researchers from Yale, MIT and the University of Cambridge are proposing a study to test the Suskinds’ therapeutic approach.  For more information about this, go to:

http://well.blogs.nytimes.com/2014/04/07/inside-the-mind-of-a-child-with-autism/